Feeling lucky?

morning

I snapped this as I was leaving the school parking lot this morning. I’m lucky this is my view every weekday as I drive away from the school.  The others waiting to pull out of the lot behind me are not so lucky.

I’m feeling lucky.  Lucky, that is, that I discovered WordPress and to be part of the WordPress family.  (As well as to have stolen this shot of the sun peeking out of the clouds this morning.)

As I’ve told many, I feel truly grateful to have such a wonderful group of bloggers out there who are so very supportive and kind.  It really is like having another family out there.  Fellow bloggers who don’t judge or compete, instead offering kind words of encouragement and support.  I truly thank you.

I’ve been nominated for the WordPress Family Award by Sonel, writer of  Sonel’s Corner (I get to experience Hartbeespoortdam, South Africa and wonderful photos through her blog), and Kira, writer of Wrestling Life, who writes some terrific poems and is also part of the Rome Construction Crew organized by Green Embers, and Let’s Talk About Family who is a wise and caring fellow soldier in this parental Alzheimer’s battle.

wordpressfamilyaward_2

Thank you so much for nominating me. I am honored to be considered part of your WordPress Family.

The founder of the The WordPress Family Award established the award because they felt that the WordPress family had taken them in and showed them love and care like a family, always there for them.  Even though we may never meet in person. I’m continuously impressed by how cool of a concept this blogging thing is.

Here are the rules to accept the WordPress Family Award:
1. Display the award logo on your blog.
2. Link back to the person who nominated you.
3. Nominate 10 bloggers who’ve had an impact on your WordPress experience
4. Let them know you have awarded them
5. That is it. Just please pick 10 bloggers that have taken you in, and spread the love.

This is the part I don’t like – having to narrow down just ten bloggers who have enriched my blogging experience in these short nine months.  There are so many! Please know that ALL of my readers and fellow bloggers enrich my blogging experience in a positive way each day, and for that I am grateful to each of you.

So here are ten of you who I feel like I could easily hang out at Starbucks with even though I’ve never met you (hoping that doesn’t creep you out).  Some of you have been with me since the early days last fall, and some just over these last few months.  All of you provide perspectives on life that make me breathe more deeply, or smile, or laugh, cry or think.

Free Penny Press

Nature Restores Me

Transformed by the Journey

Diane Gray

Lame Adventures

Sonel’s Corner

Wrestling Life

Let’s Talk About Family

Angie Inspired

Ambling and Rambling 

There are so many more that this list could go on and on.  Thank you all!

What do you feel lucky about today?

Goldilocks mission for Little Red Riding Hood successful thus far: The dreaded nursing home decision.

little redI haven’t written any posts for more than a week. I’ve been a bit numb from the drain of the last weeks with Mom, or Little Red Riding Hood, as I like to call her on my blog. And I know you readers enjoy my more light-hearted posts. So I’ve been torn about writing about Little Red Riding Hood for the last month or so. But it’s part of my Life on Wry, so I’m sharing a post I wrote today for my other blog, Laughing at Alzheimer’s (because laughing doesn’t’ make my mascara run).  So here we go.

Nursing Home selected. Check. (I’m tired … are you?)

The much anticipated intervention meeting with my Stepdad was successful. Don’t get me wrong, it wasn’t easy convincing a man that it’s best for his wife of 30-plus years to be in a nursing home because of the level of care she needs. But the hospice folks helped me get through this difficult conversation. It had to happen. I was losing too much sleep worried about them both.

We ended the meeting with him open to the idea and to hearing about my top choices after researching and touring area nursing homes that were a potential fit.

The next day when I came to help with Mom, I again explained to my Stepdad that I wasn’t trying to be pushy, but that I felt – for various reasons that I explained and probably over-explained – that it was the right thing to do for both of their safety and well being, as hard as it was to formulate those words.  He knew I didn’t take this lightly and that I had been researching options for when the next shoe might drop (after our infection in December sent Mom into a tailspin of decline). He knew my heart was in the right place.

In true Goldilocks style, I have been researching and touring various nursing homes of various sizes with differing amenities and programs. Small, medium, big homes, ones with lots of programming and little programming, ones close to my house and close to my parents’ house, in the lower, medium and higher price ranges.

I participated in these tours almost robotically, as if for a work project for which I was designing a features and benefits grid in order to write a brochure about their differences. I only cried on the way home from the tours a couple of times. It was a completely surreal experience. I wanted to have my sister with me, but it wasn’t an option. She’s been gone for 13 years. This was a solo mission. And she was with me in spirit, I really think she was.

After I went through all of my notes and all of the brochures with my Stepdad he agreed. He said it sounded like I had a favorite and he liked my rationale. I gulped and told him how much pressure that was to be the one to pick and he calmed my nerves and reminded me how much effort I had put forth. Was he really on board? He would go see it with me later in the week (last week) and bring his checkbook for a deposit if it felt right.

Was I hearing him right? Was he really on board? Don’t get me wrong, this took much time and many “come to Jesus” conversations, as I like to call them, over the last couple of years, and more angst than I can even explain. But he knew I seemed more serious this last few months since Mom’s decline. And he knew, in his heart, it was time. But was I actually hearing him agree with me on this subject for which I dreaded the very thought of? Indeed.

I explained to him how one of the nursing homes just felt right to me and I could picture Mom there. How natural it even felt with the Executive Director who gave me the tour. She reminded me of someone dear from my hometown. So many things made it seem like the right place. I drove away dabbing tears and pulling myself together, knowing that it was the place my Mom should be.

I took my Stepdad a couple days later. It was clear to me that he had taken some time to think about this whole issue, and felt even more resolve that the stimulation and care she could receive was what would be best at this point in her decline. I was still in shock that this was really happening and that I had steered our ship to this point.

Tomorrow the ‘assessment team’ from the nursing home will assess her at my parents’ house. To determine her needs, and that the facility is a good fit. Now that we’ve come this far, I only hope it will all go smoothly. I know it’s going to be a rough ride, but surely it can’t be more rough than the last couple of years, right? I’m probably wrong about that aspect, but I still know in my heart it’s what is best.

I’ve already picked out a comforter and curtains for her little room. They have flowers and the colors of pink roses in them like she likes, or liked anyway. And I have a list ready of what all that I will furnish her room with, from photos and knick knacks to her wall calendar and hand lotion. My stomach is wrought with unease, and I wake each morning consumed with guilt and wishing my sister were here to tell me I’m doing the right thing.

We’ll see what tomorrow holds. I’m going to think positively. Besides, that’s what I tell everyone else to do all of the time.

But being a grown-up really does suck sometimes. And it makes me tired.

Wish me luck.

Crossing lines.

colorfulcoloradoHer eyes watch me blankly as I turn each page and she nods her head occasionally as I narrate  — like she somehow knows that nodding is the expected response.  But the faraway look in her eyes tells me she doesn’t know what I’m narrating for her or who I am.

Little Red Riding Hood was the queen of scrapbook and photo album organization, and for that I am truly grateful.  I enjoy finding new photos that I’ve never seen with her on my weekly Wednesday visits at her house.  Her walking has become unsteady, so Wednesdays I now go to her. She watches curiously as I snap a photo or two with my phone.

I continue to try to spark something in her eyes with old photos like I was able to it seems like just months ago. But Alzheimer’s has now almost completely robbed us of those rare moments of connection, stealing so much more these last few months.

colorfulcolo

Many of the photos and mementos we go through page by page bring back such a rush of memories and I would love to talk to her about those moments and scenes from our lives.  Or to my sister. There are so many photos of the three of us.

It’s these moments when I can feel my heart getting squeezed by something deep within me and wrapped in blanket of bittersweet loss.  That’s when I realize I’m holding my breath and that I need to put the albums away until next time.

I remind myself to breathe as I place the albums back on the dusty shelf and shake off the sad like my dog shakes the water off  her back after a bath.

This old photo of my grandparents brought a smile to my face as I remembered taking this same shot of my boys as we crossed the state line on the day we moved to Colorado when my boys were so young just nine short years ago.   I never knew this grandfather but my youngest son carries his name — both of them in the right of these pictures. Who knows, maybe my Mom, little Miss Historian, took the picture of my grandparents.

Life is one transition after another in so many ways.  Some big, some small, some full of joy and some full of sadness, and many a little of both.  The challenge is knowing how to embrace each transition and carry through what we learn to the next one. And to do it with grace.

Flying over the nest.

cuckoo

“I mean—hell, I been surprised how sane you guys all are. As near as I can tell you’re not any crazier than the average asshole on the street…”  

(from Nicholson’s character in One Flew Over the Cuckoo’s Nest)

I think the universe intended for me to go to that intense yoga class that resulted in a huge release early in the week to prepare me for what was coming.  I honestly do.

Little Red Riding Hood (my Mom with Alzheimer’s) had to go to the hospital yesterday via ambulance because we couldn’t get her to walk or get up and because she doesn’t really communicate, we couldn’t figure out what was wrong.

She is still in the hospital and depending on how she recovers (apparently certain infections can make dementia worse.  Who knew?), she may or may not be able to go home since she seems to have advanced to the next stage.  Either way, the next shoe is starting to drop and I have been in full gear researching facilities and options. (These are times when I miss my sister the most.)

Hospital visits were beyond bizarre for various reasons, but mainly because 1) hospitals in Denver were full due to the flu and we were diverted to a less full hospital which was still quite full and 2) she is in a room where they put 4 people who need 24/7 “sitters” (for people who don’t understand what is going on and might try to get up and then fall).

It was like I was in a strange movie that was so awful it was almost funny.  I kept waiting to hear Jack Nicholson’s voice.

Here are some highlights:

-One of Mom’s roommates had his own sitter right by his bed at all times which made me uneasy.  He was listening to Jimmy Hendrix music and blurting out aggressive sounding phrases.  I swear to you I thought he was going to pull out a shank from under his mattress.   And he sort of had the Jack Nicholson look going on.

-Another roommate kept asking for a beer and pointing to what he thought was a beer Stein hanging up on the wall (it was actually a piece of medical equipment that did look like a Stein) and wanted us all to see it. He was the cutest and sweetest little man I’ve ever seen.  I wanted to go buy him a six pack and make his day.

-Two of the Certified Nurse Assistants (the sitters) were absolutely darling.  They have hearts of gold and I wanted to adopt them. One named Flora from the Philippines told me all about her family’s plantation in the Philippines where they grow rice.  She said if someone made $750 a month in the Philippines they would be so rich they could have five maids.

-Another of the sitters I’m guessing was from South America and was determined to find something that my Mother would eat.  We finally landed on chocolate cake and Pepsi once I got there today and shared my mother’s strange eating preferences. Worked like a charm.  Some things are never forgotten.  She also told me I have my mother’s nose and she bet my Mom was quite pretty when she was younger.  She was right.  I told her she was a beauty queen in high school.

-The unfriendly nurse (who was clearly put-out with any question I asked) was seriously channeling Nurse Ratched.

-Another one of Little Red Riding Hood’s roommates kept asking for cottage cheese over and over and seemed sad. He had a huge scar across his head.  I wanted to give him a hug but he was on the side of the room by the guy I was worried had a shank under the mattress.  This roommate’s mother came and visited him and my heart ached for her.

-There were four TVs going at the same time, plus the Jimmy Hendrix music, plus the beer and cottage cheese requests and medical chatter.  Enough uncoordinated noise to make an undiagnosed ADD person with sensitive hearing lose it. but I didn’t.

-Little Red Riding Hood has not lost her ability to sarcastically roll her eyes and did so every time a room mate blurted something out. This cracked me up.  Apparently she thought the rest of the group was crazy, not her.  Again, some things never change.

-She petted and squeezed the cute little beanie baby dog nonstop from the second I brought it in from the gift shop.  This made me happy because it made her happy.dog

-I’m damn sure figuring out a way to go to yoga tomorrow.

Thanks as always for reading…  Hug or call whatever family you have this weekend and tell them you love or appreciate them — even if they drive  you nuts.

The Good News. The Bad News. And the Reality Check that’s Needed.

Below is a post that I have re-posted from my new Alzheimer’s blog from yesterday: http://www.laughingatalzheimers.com.

You’ll see some of my past posts from Life On Wry that are related to my Mom and our journey with Alzheimer’s there for a bit as I get this new blog up to speed.  But don’t worry, LifeOnWry isn’t going anywhere!  As always, thanks for being on this journey called life with me!

alzheimer's statistic

Good News.

On several news stations yesterday I heard about the latest government report revealing that cancer death incidents have fallen in the United States by an average of 1.8 percent in men and 1.4 percent in women.  These percentages don’t sound dramatic, until you consider that the numbers didn’t start even falling until after the early 1990s.

Further, scientists report that the incidence of cancer and subsequent deaths could be further reduced if all those with New Year’s resolutions to lose weight, eat healthier, exercise and quit smoking would stick to their plans.

There is still much to be done to research, prevent and combat Cancer, the second most common cause of death in the US, but the fact that these numbers are decreasing – rather than increasing – is good news.

Added to that is the fact that the 5-year relative survival rate for all cancers diagnosed between 2001 and 2007 is 67%, up from 49% in 1975-1977. The improvement in survival reflects both progress in diagnosing certain cancers at an earlier stage and improvements in treatment, according to a 2012 Cancer Facts & Figures report.  In other words, research.

Bad News.

Now for the bad news. Alzheimer’s disease (AD) is on the rise throughout the world.  And there is still no known cure or way to prevent it, no remissions.  In fact, it is always fatal, causing brain changes that eventually impair an individual’s ability to carry out such basic bodily functions as walking and eventually swallowing.

According to a 2012 Alzheimer’s disease Facts & Figures report, about 5.4 million Americans now have AD. By 2050, more than 15 million Americans could be living with the disease, unless scientists develop new approaches to prevent or cure it.

In fact, every 68 seconds, someone in America develops Alzheimer’s. By mid-century, someone in America will develop the disease every 33 seconds. It is estimated that nearly 500,000 new cases of AD will be diagnosed this year alone.

According to the Alzheimer’s Association, AD is the sixth leading cause of death in the U.S. and the fifth leading cause of death in Americans over age 65 years. And although the proportions of deaths due to other major causes of death have decreased in the last several years, the proportion due to AD has risen significantly.

Researchers have long noted that funding for Alzheimer’s research lags significantly compared to funding for other major ailments. According to University of Mississippi Medical Center, the $450 million allocated by the National Institutes of Health (NIH) for Alzheimer’s is equivalent to less than 15% of the research funding for HIV/AIDS, less than 11% of funding for cardiovascular disease research, and less than 8% of funding for cancer research.

And for every $28,000 spent on Alzheimer’s patient care, only $100 is spent on research.  In fact, the government funds more nutrition research than it does Alzheimer’s research.

Reality Check Needed.

Through exciting research initiatives, scientists continue to make headway in understanding this devastating disease. They believe we are getting close and even at a tipping point.  We just need a commitment from the federal government to fund the level of research necessary to tip the scales on a disease with these startling numbers staring us in the face.

And we’re getting there. In January of 2011, the National Alzheimer’s Project Act (NAPA) was signed into law by President Obama. According to the Alzheimer’s Association, The National Alzheimer’s Project Act (NAPA) will create a coordinated national plan to overcome the Alzheimer’s crisis and will ensure the coordination and evaluation of all national efforts in Alzheimer’s research, clinical care, institutional, and home- and community-based programs and their outcomes.

But that’s just the beginning. Because there are no survivors of this disease, and those affected directly are largely unable to advocate for themselves and for the need for more research (like many AIDS and Cancer survivors are able to do), we must speak out about the need to federally prioritize the impending Alzheimer’s epidemic.

Members of the public — not just medical and association professionals — need to speak up and take action, to contact their representatives in Congress and become advocates through the Alzheimer’s Association.  To defend helpless Alzheimer’s victims, much like we defend the voiceless for other causes in our society.

The time is now to take action.

Visit the Alzheimer’s Association’s  advocacy pages for a simple way speak up for those affectedhttp://www.kintera.org/siteapps/advocacy/ActionItem.aspx?c=mmKXLbP8E&b=7516993&auid=8520366

The Alzheimer’s Association — and for Coloradans – it’s the Alzheimer’s Association of Colorado — is the best place for families to go to learn about programs and services available to those on the Alzheimer’s journey, as well as about opportunities to participate in local research through TrialMatch.

Believe me, you have no idea how awesome this organization is until you’re faced with this disease and they help you breathe easier.

alz.org/co | 800 272 3900 helpline 24/7

Top Thing I Really Should Have Learned in 2012. (Top Ten Continued)

Top Thing I Really Should Have Learned More About in 2012: MATH

As a kind and gracious reader of my last post pointed out, I left out #5 on my top ten lessons learned. I’ve always said as a Journalism major, I simply don’t do math. But really, that’s pretty funny.

So what would number 5 really be?

snowintree

Well, as I drove home from school drop off this morning, I couldn’t help staring wide-eyed at the snow all around me.  And noticing how soft it felt under my boots and as it landed on my sweater. I wanted to take a picture of every tree with snow perfectly placed on its branches as I drove past them this morning .  I know it sounds corny, but I really don’t care.

Even at 20 degrees this morning, I couldn’t help smiling.  I even went back outside after my return to take my neighbor’s paper to her doorstep.  It was so beautiful and perfect and soft that I seriously didn’t notice the 20 degrees.

I have learned the importance of stopping and noticing so much more in 2012.  Maybe it’s the writing that has made me more observant.  Or the introspection that more disciplined writing has spurred.  Or maybe this gratitude thing has really started to change my view in a way more significant than I had realized?

But it feels right despite its borderline cornitude.  I’m slowing to notice the snow, the deep orange and pink skies letting the sun out from under its covers early in the morning and the brilliance of the moon in our bathroom skylight before I close my eyes. The way petting my little red furry muse (monkey dog) warms me inside and makes my blood move more thoughtfully through my veins. The way so many people and things are not what I had first thought before I started this process.

The twinkle in my sons’ eyes when I spend extra minutes to encourage them and talk to them before they go to bed. The way each year we think our Christmas tree is the prettiest we’ve ever had. The way my Mom’s giggle was back (even if temporarily) when I visited her yesterday as she picked up one of the bills I was paying over the phone and gestured to it like it had the best joke written on it that she had ever read. Even though she lost her ability to read and comprehend a good year or so ago.

Maybe a part of my brain that was asleep has peeled the covers back to take another look?  I hope it never goes back to sleep.

Indeed, that is the number 5 lesson learned for little Miss Math Challenged … how powerful the effect of stopping and noticing can be.

What have you stopped and noticed today? 

Reprogramming my Brain’s Autodrive — a Holiday (and Life) Survival Technique

Cerebral_lobes

I haven’t written in several days.  I figure it’s because of the general holiday madness that seems to zap every spare moment I have.  But also due to my sporadic funk caused by emotions and memories that come rushing in at me during the holidays, like a rising tide that splashes me when I’m not paying attention, just a little at a time.

Just the other day I was reminded of events that brought back some not-so-great memories and feelings. A piece of mail was all it took to break this particular dam of unsettled emotions.  I found myself reliving hurt and anger over past events from many years ago. Until I caught myself and became aware of what was happening.

I’ve been much more zen (as my niece puts it) and more at ease with everything and everyone this past year, so I’m a little disappointed with myself when I let this happen. My logical self knows better than to replay and get riled up over events that are over and done with.  And move forward. Because, as I always say, life is short …  right?

Fortunately I was able to catch myself and become aware of what I was allowing to happen.  At that point I remembered an interview I heard on the radio in my car just an hour or so before. It was an interview with Deepak Chopra about his new book that he wrote with Rudolph E. Tanzi, an expert on the causes of Alzheimer’s.  It’s called Super Brain, Unleashing the Explosive Power of Your Mind to Maximize Health, Happiness and Spiritual Well Being.   (I just bought it for myself as an early Christmas present to read on my Ipad.)

In the interview Chopra discussed how, in contrast to the “baseline brain” that fulfills the tasks of everyday life, the brain can be taught, through a person’s increased self-awareness and conscious intention, to reach far beyond its present limitations.  He explained how we don’t have to expect to react to situations  in the same ways we always have (the interview was relating this to holiday stressors like family visits).  Because, as he explained, nothing can inevitably make us feel a certain way.  We often decide how to react based on our brain’s “autodrive”  which has been programmed with patterns and expectations.

The book discusses how we can easily reshape and reprogram our brain to better awareness, health and well-being.  How a better mind-body connection, combined with a lifestyle for a healthy brain, can actually diminish effects of aging and memory loss, anxiety and even obesity and more.  Their work debunks several myths about how we understand the brain and aging, explaining how we can actually increase brain cells as we age, rewire our brain to stay young, and prevent memory loss. I still need to read the book, but connecting feelings with memories seems to be a common thread of their discussions.

Chopra explained a particularly memorable technique called STOP to use when faced with any challenge or unwelcome feeling:

S – Stop what you are doing

T- Take a deep breath

O- Observe what is happening in your body

P – Proceed with kindness, joy and love.

And this is what I will continue to try to practice — which is also the basis of what therapists, philosophers and yogis have been trying to teach us for years.  To step back — become more  present and aware — and proceed with the manual setting fully switched to the ‘on’ position.

What feelings have you become more aware of – and in better control of –  over the years?

I’m grateful for these reminders and insights, and the ability to further take charge of my fate. Thanks for reading…

The results are in. Gratitude Experiment: Day 100

Holy moly this is my 100th post, the end of my 100-day gratitude experiment! I’m a day late posting due to travel, but I’m again back in the saddle with my red furry muse by my side.

Thanks so much for accompanying me on this journey of gratitude. There is absolutely no doubt that more purposeful daily gratitude has made a profound difference in my life.

These past 100 days have undoubtedly made me more aware of my own energy and observant of the energy and environment around me. It is hard to explain how good that feels. So much so that I know that I must continue to make it part of my writing.

This journey has also helped me learn about the blogosphere and the world of possibilities for my writing. Outlines are in the works for ebooks related to gratitude and Alzheimer’s support. The possibilities are endless. The trick is narrowing them down and prioritizing. What a great problem to have.

My blogging is now part of me and it will definitely continue. As will my practice of disciplined gratitude which has truly helped me begin to center my mind. But there is still much more for me to learn and more centering to do.

I’ve learned that a challenge proclamation is certainly the best way to tame the procrastination beast within me. So the question remains what will the next challenge be? I will proclaim it by week’s end.

In the meantime I close with this quote from Buddha which sums up my thoughts quite well at this moment. Thank you again for continuing to follow me on this journey!

To enjoy good health, to bring true happiness to one’s family, to bring peace to all, one must first discipline and control one’s own mind. If a man can control his mind he can find the way to Enlightenment, and all wisdom and virtue will naturally come to him.
Buddha

My Own Little Red Riding Hood. Gratitude: Day 91

I saw her as she started to get out of the car today at the end of my sidewalk. In her little red hooded coat. Mom was more hesitant than usual today, but I got her to come with me —  out of the car, up the walk and into the house.  She even giggled a few times as I did my best Three Stooges silliness to make her laugh.

Today was my Wednesday with Mom day, when my stepdad drops her off to spend time with me while he goes to his doctor appointment.

As I took her little red jacket off once we were in the house, I felt the circle of life rounding up to a near completion.  As if I was my mother taking a coat off of me when I was little.  But instead, it was me taking her coat off as she looked at me quizzically, wondering what I was doing as I gently removed her coat.  I ushered her to a seat at my kitchen table with magazines for her to shuffle like she seems to enjoy.  I even made her a sandwich and thought about how she used to make me a peanut butter and grape jelly sandwich each day after school with a glass of milk in a jelly jar glass.

Her Alzheimer’s continues to progress and she hardly speaks.  But she is happy and I can still make her smile.  For that I am grateful.  I dread the day when I can no longer make her smile, but I try not to focus on that.

The little red coat she wears was given to me on Christmas when I was almost 16, by my Dad and stepmom.  I always loved that Woolrich coat and it matched my first car — it was a clue that Christmas that I had a red present that might be in the driveway.  (It’s actually the same coat that I was wearing in the photo from my post ” letter to my 14-year-old self .”  And I’m pretty sure that picture was  taken that same night as my sister and I celebrated Christmas with my Dad and stepmom.)

Mom always liked this coat too, and as I grew out of it, her petite frame was still able to wear it, so she adopted it. And because she has always taken perfect care of everything,  today it still looks just as new as it did years ago.  It has a plaid lining and hood, and sometimes my Mom wears the little hood when we go out.  Like my own little red riding hood.

Today I am grateful that I am able to spend time with my Mom in her little red coat on Wednesdays.  The days are a bit long, sometimes zapping my energy from the emotions of it all, but I am glad I can spend time with her.

What are you grateful for today?

Ode to Serendipity. Gratitude Experiment: Day 71

Today I received one of those unexpected clues that all is right in the universe and that I am exactly where I am meant to be.

Every have one of those?  They are great moments.  And the more aware you become of them, the more you notice these clues.

Backstory:  I’m jealous of other people’s friendly mailmen.  Or maybe they are just always friendly in the movies.  But I know my parents have a super friendly mailman who they have had for years and they actually know all about him and his family.

My regular mailman, on the other hand, is not so much  friendly.  He is not a ‘waver’, he doesn’t’ really ever say hello and he doesn’t smile.  I can’t figure out if he’s sad or just shy.

Or maybe it’s just me.  He does seem somewhat petrified of me for some reason.  Perhaps it’s because he’s terrified by my two maniac dogs who go crazy when the doorbell rings.  Or he just really doesn’t like people anywhere near his personal space bubble.

For example, when he comes to the door with a package and has to ring the bell (I picture him wincing as he reaches for my bell), I usually open the door and come out (so I can close the door behind me and leave the crazy dogs inside). This is when his eyes open wide and he takes several big steps back very quickly, like I am going to attack him or kiss him or something.  It is the oddest thing and he does it every time. I swear I am not abnormally large, fast or loud, or even that scary looking, and I don’t go to the door if I am, in fact, scary looking.  I just can’t figure it out.

So it’s always a treat when we have our substitute mailman who covers our route when our guy is not working.  Substitute mailman  is very friendly and actually speaks and smiles.  And he doesn’t  seem afraid of me, which is a plus, and much better for my ego.  But I don’t get to see him that often.

Okay, I know what you’re thinking… Geez, this chick really doesn’t  get out enough —  the mailman seems to be the highlight of her day.  Explanation:  I work out of my house and mainly talk to my clients through email.  So, on many days, the mail delivery really is the highlight and the main opportunity for me to see daylight, hoping that I don’t melt like a vampire.  Anyway, bear with me.

Today, substitute mailman rings the doorbell.  I answer and as soon as I realize that it is friendly substitute mailman, he says “Hi, how is your Mom doing?”  I paused for a moment trying to figure out how he would even know that I have a Mom, much less that she is someone who people routinely ask me about.

I looked at him quizzically and said “fine … why do you ask?”  He explained to me that he read my letter to the editor about Alzheimer’s that was published in the newspaper over a month ago.  He recognized my name in the paper and that I was on his route that he covered for on some days.  He explained  how he remembered which house I was in and about my Mom, because his dad has Alzheimer’s too. (Note:  I do NOT  live in a small town.  This is not a regular occurrence)

We had a very nice conversation about Alzheimer’s and our parents. As I watched him walk away, I thought about how I’ve never said more than hello to him before, but he was sweet enough to a) notice the letter in the paper and actually read it, b) recognize my name, c) remember which house I was in and d)make an effort to come to the door and hand me my mail so that he could ask me about my Mom.  I sort of tear up just writing about it and the thought of it makes my heart swell a bit.

So this is why I am grateful today.  I am thankful to have received what I interpret as a sign that all is right in the universe and that I am exactly where I am supposed to be, despite how often I sometimes question the universe and my role within it.

And because my substitute mailman made my day.

When was the last time you received a clue from the universe that all is right and exactly as it is meant to be – also known as God’s winks by one book that I’ve seen, and as moments of serendipity?

Watch out for flying pumpkins. Gratitude Experiment: Day 50

by Scenic Reflections

Warning: The following post is a work of NONfiction. Names, characters, places and incidents are NOT products of the author’s imagination or used fictitiously.  Any resemblance to actual events or locales or persons, living or dead, is entirely real. (This actually happened to me and I am not making it up.)

October has arrived and I am starting to see Halloween decorations in all the stores. Each October for the last 30 years (except for the last two), my Mother has sent me a Halloween card that says “Watch out for flying pumpkins!” She probably bought the cards, as well as some little Halloween gifts, at least eight months in advance and had everything wrapped, stamped and ready to go each year on September 1st.

Halloween is my favorite holiday when the semi-suppressed kid in me goes hog-wild decorating with creepy stuff that scares really little kids. But I must admit the lack of that tradition of a card for this last couple of years has been bittersweet since the Alzheimer’s grim reaper came to visit.  At any rate, I  tell this story at least once a year explaining why my Mom always sent me a card that said “Watch out for flying pumpkins” each year.

As I was growing up, one of my closest friends was almost as big of a freak as I was.  Actually a few were but I’m going to focus on one of them for now. I had a way of attracting them.

In sixth grade, we didn’t want to admit that we still had closets full of Barbie condos, cars and outfits, so we began disrobing them and being creepier than we already were.  We would prop them up on mailboxes and trees naked on the path between our houses ( she lived up the hill a good ten or so houses away).  We always attached notes with disturbing sentiments to amuse each other. That way whichever of us was walking would have to see them and collect them for reuse at another date. (We brought Barbie arms to each other’s weddings for photo opps of Barbie’s arm in our wedding cakes.)

We even put one in the middle of the road one time with ketchup on it like it had been run over.  Cranky Mrs. Clapp from across the street (our version Mrs. Kravitz) found me less than amusing and came and told my mother about it. What a buzz kill.  Fortunately my mother already knew I was warped.  It was in the genes.

At any rate, one year my friend and I wanted to go trick-or-treating even though we were in the 9th grade.  We wanted to be those creepy way-too-old kids that come to the door for candy and make people want to lock the door early.  Clearly we thought we were hilarious.

I wore a super realistic (or I thought so at the time) ‘old man’ mask and a man’s sports coat, and used a golf club as my cane.  I cant’ remember what my friend’s get-up was, but I’m thinking she was equally disguised so no one would realize what freak geeks we were trick-or-treating in high school.

As we strolled up and down the streets on our neighborhood Halloween haunt, suddenly a speeding car came racing by us. It kept turning around at the end of the street and racing by us again.   It was a navy blue Honda Prelude (I can’t believe I remember but I can see it now). It was a 1980s version before they came out with the new body style which I thought was super cool.  (The new body style had a “moon roof” and I used to tape magazine ads of it up around my dad’s office and house to give subtle hints of my auto preferences.)

Anyway, about the third or fourth time the Honda Prelude zoomed by us, I decided ( in keeping with my character) to wave my cane in the direction of the car and yell “Slow down you meddling kids!” full-on Hanna Barbera style.

The next thing I knew I woke up on a couch at my neighbor’s house.  The house that now had splattered pumpkin all over the driveway.  Luckily they called my Mom and when I came to, she was staring down at me as I lay on the couch.  My friend had probably crapped her pants by now thinking I might be dead, I can’t remember.  But I’m thinking she’ll remember when she reads this post.

I had a gash on my nose from where the stem of the pumpkin made its impact and it knocked me out cold. Those meddling kids had been throwing pumpkins out of their speeding car that night (super smart, almost as smart as I was yelling at a car and waving my fake cane).  My mom and her boyfriend (now my stepdad) drove me to the Emergency Room in his super cool white Firebird. As we walked in , I kid you not, my mom said to the nurses at the front desk “My daughter’s been hit by a flying pumpkin.”

The nurses at the station did everything in their power not to break out into hysterical laughter at my expense. I was sort of out of it, but that part I will never forget. Complete teenage mortification was in process and it was only getting started.

I got to miss school that next day.  The ER doc told them I had a concussion.  I sort of remember my Mom waking me up in the middle of the night to make sure I was breathing.

Word got around school about what had happened to me.  Nice, my nerd cover was WAY blown.  Turns out the person who threw the pumpkin was an upperclassman named Doug that I sort of had a crush on (I promise I am not making this up).  What are the odds? Word got around that my dad was a lawyer, so he got scared and called me at my house to apologize.  That was a super fun conversation to have with an upper classman.  I was mortified.

It all ended well and makes a great story to tell that explains the “Watch out for flying pumpkins” cards.  I am grateful that I survived the Pumpkin Incident (sounds like a Charlie Brown holiday special)  even though I miss receiving that card every year. I’m also celebrating my 50th post – half way through my 100-day gratitude challenge!   What are you grateful for today? Thanks so very much for reading!

For real. Gratitude Experiment: Day 40

 

Whew. I am wiped.  What a weekend.  Wonderful time with my dad, stepmom and niece in town. One of the best weekends I can remember in a while.  I am so grateful that they all battled the craziness of the airports to come for the weekend.  Truly thankful.

But I do feel almost guilty for how heavy my last post was.  There’s that subconscious Catholic guilt again. But I just had to get all that out there, and it helped.  Thanks for muddling through all this self-discovery with me.  It’s way cheaper than therapy.  So I owe you.

September 22 is always a weird day, not only because my sister died on that day, but also because it is my Mother’s birthday.  For real. Yes, I know.  That is messed up with a capital M. In a big way.  Don’t even get me started on that.

At any rate, my out-of- town company family left this afternoon and then a few hours later, my mom and stepdad came for dinner to celebrate my mother’s birthday (a day late but trust me, she’s not counting — sorry that was awful).  I could tell she thought the whole cake and presents thing was fun, but she really had no clue why we were all singing to her. She was very puzzled (Alzheimer’s has a tendency to do that). And when it was time to leave, she went to the laundry room.  In total, she said about five or six words tonight. But she faked it pretty well.  Glad she can still pull it off.

For years, my sister and I always co-hosted dinner for my mom on her birthday.  We would flip a coin as to who would host and then sort of whine and complain all the while because it was always a little bit of an awkward night for reasons hard to explain.  But none of those nights hold a candle to the out of body experiences I have like tonight with my mom.  It’s like I’m watching a movie of someone else’s life in partially slow motion, and with German subtitles that I don’t understand.

But anyway, back to the gratitude which has really affected everything in my life, for real.  I am grateful for my family that visited and the wonderful time we had.  And that dinner with my mom went so well,  and that she seemed genuinely happy.  Thanks for reading.

 

I’m Seeing Purple. Gratitude Experiment: Day 32

I walked in the Walk to End Alzheimer’s this morning. What a terrific feeling of hope and camaraderie to walk away with. Last year the Denver walk broke its record with 8,000 walkers.  I guarantee you it was an even bigger crowd today.

I walked with a good friend who walked in memory of her mother who she lost to Alzheimer’s three years ago.  And I walked in memory of my Aunt, who we lost to Alzheimer’s a year ago this month and in honor of her sister, my Mom, who I’m losing to Alzheimer’s a little more each day.  I drew a picture of them on a huge sign they had for people to paint memories of their loved ones.

In a sea of purple, I saw photos on the back of so many walkers’ shirts. Photos of loved ones lost to this hateful disease. The thought that so many like me are fighting this fight is both comforting and terrifying.

This disease isn’t going away anytime soon, as the numbers continue to climb.  Yet it seems like the world is in denial about this disease and how very real it is.  Perhaps it doesn’t seem as real because you don’t visit anyone in the hospital when they have this disease?  And because you never hear anyone with it describing their suffering?  Because they can’t speak for themselves.

But it is very real.  And someone new is diagnosed every 68 seconds.  And by 2050 it will be someone new every 33 seconds.

Ironically, federal funding for Alzheimer’s research pales in comparison to that for other chronic diseases. According to University of Mississippi Medical Center, the $450 million allocated by the National Institutes of Health (NIH) is equivalent to less than 15% of the research funding for HIV/AIDS, less than 11% of funding for cardiovascular disease research, and less than 8% of funding for cancer research.  And for every $28,000 spent on Alzheimer’s patient care, only $100 is spent on research.  In fact, the government funds more nutrition research than it does Alzheimer’s research.

I recently had the privilege of listening to a scientist discuss research initiatives and progress made. Scientists believe we are getting close and even at a tipping point.  We just need a commitment from the federal government to fund research.

And we’re getting there. In January of  2011, the National Alzheimer’s Project Act (NAPA) was signed into law by President Obama. According to the Alzheimer’s Association, The National Alzheimer’s Project Act (NAPA) will create a coordinated national plan to overcome the Alzheimer’s crisis and will ensure the coordination and evaluation of all national efforts in Alzheimer’s research, clinical care, institutional, and home- and community-based programs and their outcomes.

But it’s going to take much more. The public has to make it known what our federal priorities with regard to the impending Alzheimer’s epidemic should be, especially given shrinking budgets at every turn.  More people need to speak up and take action, contact their Congress representative or become advocates through the Alzheimer’s Association.  To put faces on the need. The website of the Alzheimer’s Association has advocacy pages dedicated to helping you do just that. http://www.kintera.org/siteapps/advocacy/ActionItem.aspx?c=mmKXLbP8E&b=7516993&auid=8520366  I know this is  a blatant plug for my cause, but I know with every molecule in my body that you DO NOT want to watch this happen to anyone you love.

If you’re still reading this and you’re not exhausted, I commend you.  And I appreciate you taking the time.  I’m truly grateful that you are reading this, that I went on that walk today, and that we can end this.  Let’s do it.

Why Alzheimer’s Is a Drag. Gratitude Experiment: Day 31

Even though it goes against the grain of my 100-day Gratitude Experiment, I feel the need today to write about why my Mom having Alzheimer’s is a drag.

I’m convinced that some gratitude will come to me by the time I finish writing this.  And I’m hoping these thoughts will help my readers cherish every moment they have with their loved ones.  And take nothing for granted.

My Mom having Alzheimer’s is a big fat drag because:

1. I wish I would have spent more quality time with her before she got sick.

2. I wish I had asked her if her favorite color was still yellow when she could still tell me.

3. I wish I would have paid better attention to the signs in the beginning.

4. I desperately wish for rare moments of clarity to happen when I am near.

5. I worry about her dignity.

6. Most healthcare workers have no clue how to treat a person with Alzheimer’s.  And it makes me want to help change happen.

7. She is afraid to take a bath.

8. I wish I could remember the name of that flowery lotion my grandmother used to give her every Christmas.  And I wish I had someone to ask that would know.

9. I worry about my Stepdad being sad and tired.

10. I worry about my Stepdad getting hurt and me not knowing.

11. I wonder how much of what I say she understands.

12. I wonder if I offend her by babying her.

13. I  wish I had taken better notes about my family history.

14. I wish I really knew when all this started – so hard to tell.

15. I worry about when the next shoe is going to drop.

16. I think about how she would not want to be this way.

17. I worry that she is frightened and she can’t express it.

18.  I’m scared to death it’s going to happen to me.

On the other hand, I am still able to be grateful because:  (whew, glad some gratitude came through)

1. I love it when I have what seems like a tiny a breakthrough with her.

2. I am happy when she smiles her old smile.

3.I love to be silly and make her laugh (when I use Three Stooges type humor it cracks her up).

4. I can tell she enjoys changing the bed sheets with me.  Especially if I’m silly while we’re doing it.

5. She’s still my Mom in there.

6.  I love that she said  really sweet things to me that day a year ago when I did her hair for her, when she was better able to comprehend and talk.

7. My stepdad is solid as a rock, and I love him for it.

8. I’m lucky that she lives close now so I don’t worry even more.

9. I can have these tiny moments of joy with her to always remember.

Thanks for reading.