Tag Archives: only child

White Christmas Dreams and Santa’s list. Damn that Christmas music. (Grasping for Gratitude)

Christmas tree

I know better.  I really do.  What kind of holiday high was I on to think that turning on old holiday music while I decorated my tree during a Little Red Riding hood visit was a good idea?

Being a bit of a sentimental sap already (especially with old tunes), holiday music has a way of making me miss ‘what was’ more than any other kind of music.  Thoughts of my Mom and sister and I decorating the tree while the Christmas music blared into our fancy room with green carpet and yellow velvet love seats, and all of my Mom’s plants all around the room.

I would get so upset if they started to hang one single ornament or place one strand of silver icicle tinsel garland before I was there with them.  They knew what a younger kid complex I had, so they were very patient with me.  We would get the tree decorated perfectly, just in time for our cat Rascal to knock the whole thing over during the night.

So while my Mom (Little Red Riding Hood) was here today for her Wednesday visit, I thought some holiday music might put a little sparkle back in her eyes while I worked on my Christmas tree so the boys could decorate it later.  Sometimes little things like this can bring her back for a moment. But sometimes reaching for those random lucid moments can be downright exhausting.

I’m really not sure if she even  knew who I was today.  She barely spoke a word and her Alzheimer’s seems to have progressed to a new level. She can’t really dress herself and she seems to have little energy.  I can’t really be sure if she still thinks I even look familiar.  She hasn’t known our names for about two years now.

I kept asking her if the new garland looked okay on the tree and if she liked it.  Not even a smile — which is usually the saving grace of these encounters.  She just looked at me like a was a complete stranger yammering at her and she continued to pick up tree needles from my floor.

As I adjusted my tree ribbon and listened to Bing Crosby drone on about his White Christmas dreams and someone sing about Santa coming to town and checking that list twice, a few tears streamed down my face in slow motion.This isn’t going to get any better and I just hope it doesn’t drag out forever, for everyone’s sake.  And I feel guilty for thinking that.  Nobody gets better with this disease.  They just run out of life.

I tried not to let her see my tears, even though I really don’t think she could notice.   I wished I could have called my sister to complain, whine or speculate about what’s next on this dim horizon.  But I haven’t been able to do that for 13 years. She left me here to figure all this out, even though I know she didn’t mean to.

I know in my heart I have so much to be grateful for.  My health, my family, a roof over my head, my friends…..  But this morning just sucked.

So after a few songs, a few more tears, and a few more blank looks from my Mom who was still collecting dust bunnies and needles from my floor, I grabbed the remote from the table, clicked off that damn music and walked away from the tree.  My throat was tight from my pent up tears and I took a deep breath.

I noticed Mom had something in her hand.  It was a grocery list that my stepdad had written and probably thrown away. She must have had it in her pocket. It was in three pieces and she kept looking at the pieces and refolding them. She’s been a list-maker since I can remember. I grinned because some old habits really do die hard.

Who knew what was going through her head while that music played and I decorated a tall outdoor tree in the center of my living room?  Maybe running her fingers over the little pieces of that list in her hand brought her some kind of comfort that she needed.  If that’s the case, I’m certainly grateful.

Grilled cheese with pickles. Gratitude Experiment: Day 39

Thirteen years ago today I woke up and started the day with my sister just a few miles away.  When I went to bed that night, I no longer had a sister a few miles away, or even many miles away.  Still seems so strange, to have someone in your life one day and taken from you the next.

It was my first day back from maternity leave after my youngest son. And my first meeting that morning.  I was getting the full-on data dump from my coworkers who had covered my clients and projects while I was on leave.  They were happy to hand them back over.

As I sat, asking questions, taking notes and trying to catch up, the call came in.  Our office manager had a serious look on her face as she walked into the conference room to tell me there was a call.  I asked if she could take a message and the slight shake of her head side to side signaled to me that something wasn’t right.  The room cleared.

My stepmom was on the line.  She told me that my sister had been in an accident and I needed to get to the hospital, now.  I don’t remember what else was said on that call but I remember the sound of her voice as the words came out and made my stomach feel sour. I can still remember the tan linen blend suit I was wearing and the black shoes that I looked down at while I was processing the words floating in the air.  I found my purse and flew out the door as my coworkers offered me a ride, worried for my worry. My thoughts raced.

When most people have a car accident, they get hurt and then they heal and go home.  I was prepared, we could handle whatever kind of injuries we needed to adjust to.  I could help her however I needed to. All this ran through my head as I drove robotically to the hospital that sunny fall morning.

But as I walked into the emergency room and was directed down a hall, I was greeted by the hospital Chaplain.  I now know that if you are ever greeted by a hospital Chaplain, you better buckle in and hold tight because you’re getting ready to hear something you don’t want to hear.

The next few hours are a blur with family members huddled in the hospital prayer room, taking turns in and out to see her.  I had to hear her injuries described to me a few times before it really sunk in.  Actually I don’t think it sunk in at all that day.  But she wasn’t leaving the hospital.  I think that’s what they were saying.  I was hoping I was understanding it all wrong.  But no, she wasn’t coming home.

I got to say goodbye to her that morning and I think she could hear me.  I really do.  No, I know she did.  The nurse in the room with me pointed to the movement on the machines tracking her vitals which were connected to the machines keeping parts of her body going.  She showed me how they changed as I spoke and told her what a wonderful sister she was.  And what a wonderful mom she was.  I told her that her daughter was going to be there any minute.  I said all of this over and over, in between sobs, as if on a loop.

Her daughter made it to the hospital, being pulled from her junior high class by her dad.  It was as if my sister was holding on until she could her daughter’s voice.  It was right after that when even those few vital signs ceased.  My niece told me she saw a bright light in the hallway outside of that hospital room.  It was her Mother.

We all went home that day with a hole in our hearts that remains today. I know she is with me, with all of us, all the time.  And I am at peace. But the hole remains.

My niece and parents are in town this weekend and we celebrated my sister by being together.

She loved grilled cheese sandwiches with pickles from Sonic. I’ll be making a stop by Sonic tomorrow for sure.

Today I am grateful for the wonderful memories I have of my sister that make me smile, for the time I had as her little sister, and for the joy she still brings us.

Why Alzheimer’s Is a Drag. Gratitude Experiment: Day 31

Even though it goes against the grain of my 100-day Gratitude Experiment, I feel the need today to write about why my Mom having Alzheimer’s is a drag.

I’m convinced that some gratitude will come to me by the time I finish writing this.  And I’m hoping these thoughts will help my readers cherish every moment they have with their loved ones.  And take nothing for granted.

My Mom having Alzheimer’s is a big fat drag because:

1. I wish I would have spent more quality time with her before she got sick.

2. I wish I had asked her if her favorite color was still yellow when she could still tell me.

3. I wish I would have paid better attention to the signs in the beginning.

4. I desperately wish for rare moments of clarity to happen when I am near.

5. I worry about her dignity.

6. Most healthcare workers have no clue how to treat a person with Alzheimer’s.  And it makes me want to help change happen.

7. She is afraid to take a bath.

8. I wish I could remember the name of that flowery lotion my grandmother used to give her every Christmas.  And I wish I had someone to ask that would know.

9. I worry about my Stepdad being sad and tired.

10. I worry about my Stepdad getting hurt and me not knowing.

11. I wonder how much of what I say she understands.

12. I wonder if I offend her by babying her.

13. I  wish I had taken better notes about my family history.

14. I wish I really knew when all this started – so hard to tell.

15. I worry about when the next shoe is going to drop.

16. I think about how she would not want to be this way.

17. I worry that she is frightened and she can’t express it.

18.  I’m scared to death it’s going to happen to me.

On the other hand, I am still able to be grateful because:  (whew, glad some gratitude came through)

1. I love it when I have what seems like a tiny a breakthrough with her.

2. I am happy when she smiles her old smile.

3.I love to be silly and make her laugh (when I use Three Stooges type humor it cracks her up).

4. I can tell she enjoys changing the bed sheets with me.  Especially if I’m silly while we’re doing it.

5. She’s still my Mom in there.

6.  I love that she said  really sweet things to me that day a year ago when I did her hair for her, when she was better able to comprehend and talk.

7. My stepdad is solid as a rock, and I love him for it.

8. I’m lucky that she lives close now so I don’t worry even more.

9. I can have these tiny moments of joy with her to always remember.

Thanks for reading.

A Bittersweet Solstice Approaches. Gratitude Experiment: Day 23

Bittersweet defined is a combination of both bitter and sweet – a feeling that is both happy and sad at the same time. This familiar emotion finds its way back to me each year, just as the first signs of Autumn find their way back to us all.

It’s my favorite time of year and always has been, flooding me with memories of autumns past.  The smells of damp leaves and firewood, the crisp air that fills my lungs, the glorious colors that open my eyes to nature each year, and the sound of fallen leaves underfoot.  My very favorite season.

The approaching September equinox called out to me today, as it does each year when the summer’s curtain draws to a close.  Letting me know that fall is approaching and the time for winter is near. It’s sad to see the summer end, but also sweet to see the cycle complete.

There are two equinoxes every year – one in September and one in March.  When the length of day and night is almost exactly equal all over the world, with seasons opposite on either side of the equator.

Derived from Latin, the word equinox means “equal night.” I explained this to my kids as I drove each one to school this morning, and as I do each year when the sun on the horizon nearly blinds me as if to awaken me from a summer’s sleep.

The autumn equinox happens each year, the moment the sun crosses the equator, always on September 22nd, 23rd or 24th. On any other day throughout the year, our planet tilts away or toward the sun.  But not on each equinox, when the sun shines more directly upon us than any other days of the year, as if to remind us of our smallness in the universe.

Thirteen years ago on September 22nd, just before the autumnal equinox, my sister crossed over and left this world, just as the sun crosses over the equator.  The sun was blinding her way that day, or maybe calling her toward it. It was also my mother’s birthday.

I’m really not sure what God and the universe had in mind that day, but I’m determined not to let it zap the gratitude out of me as I gear up for this month’s memories, filled each year with emotions, both happy and sad.

When I see the sun each morning so boldly reminding us of its presence near the horizon, I know it is a bittersweet reminder for me to plant the seeds of both appreciation and caution for all that is. Today I am grateful for the sun and all that she reminds me to be thankful for.

Not forgotten. Gratitude Experiment: Day 16

I raced to get home after grocery shopping this morning to arrive before my step dad dropped off my Mom.   This is part of our routine.  He drops my mom off on the way to his weekly doctor appointment and I watch her for a while.   My mom has Alzheimer’s and is only 71.

Mentally, I have to gear up for visits with my mom, even though it has gotten easier since they’ve lived nearby for the last year and a half.   I used to be mentally drained for at least a day or so after every visit.  Sometimes it still really takes it out of me to see her this way while knowing that there is much worse to come.  But as I have worked through my grieving process for my old mom, I have learned to try to find a bit of  joy in our moments together as I search for her old self within her.  I like to think maybe my real mom is in there and it will just take me doing or saying just the right thing to get a piece of her back, even if just for a minute.

I looked out the door as she was getting out of the minivan. He usually lets her come up the sidewalk by herself .  Thank God she had her teeth in — my stomach sank at first when I couldn’t tell. Any casual observer would  think nothing of this.  Until she gets to my door.  She reaches for the door, then she stops and stares at me blankly.  Then today, in response to my hello, she said “hi” in her familiar mom tone.  (Hearing her old voice at the beginning of a conversation used to make me think maybe I just dreamed this whole thing.) At any rate, this was much better than her usual shoulder shrug.  I breathed a sigh of content.

As I walked her into the kitchen, the family history notebook she put together years ago was on the counter.  Secretly I was hoping she would recognize it. Maybe it could be the spark for today?  She spent a few years compiling it about 20 years ago and it is ever so thorough, with ancestry charts, old letters my grandfather sent home from WWII, newspaper articles, birth announcements and the like.

I point to it and explain to her that it’s the family history book that she put together years ago.  I told her how helpful it was for my youngest son’s school project last night.  She looked at me puzzled and said, “I did?”  I pointed out photos of her parents and her sister and she gave me a look that was both puzzled and blank at the same time. But I wasn’t giving up.

I motioned for her to sit down as I helped her understand the chair.  I let her thumb through some pages on her own. Maybe the pages would feel familiar?  I showed her the  photos of all of the houses her parents had lived in.  Photos have worked a little before. I narrated as I walked her though the book .  She was more intent than I have seen her in months.  I told her that I would be right back and I ran upstairs to answer a quick email for work.  I do this occasionally with ears perked in case she opens the front door in search of my step dad.  She is always looking for him when she is at my house, as though she thinks he’s in the house or just outside. She is much more at ease when he is at her side, which warms my heart like an old love story.

I started getting anxious and quickly jogged down the stairs, worried that I had taken too long.  To my surprise, I found her still sitting in same spot very intently thumbing through each page over and over and back and forth.  She looked content and engaged.

When my step dad arrived to pick her up she pointed at the picture of herself in a newspaper article when she was one of the beauty queens at her college.  She told him “That’s me” and smiled her cute little smile.

My heart sang.

On the second page of this 200 page family history notebook of my mother’s ancestry, it reads:

“I wish I had been more interested in what my parents told me about their families and early years.  I put this history together in the hopes that the knowledge and memories I have would not be forgotten.”

And for this I am grateful.

Give me a dam break. (And it’s not what you’re thinking.) Gratitude experiment: Day 10

I had an interesting conversation with someone today about exploring new interests and skills and what compels one to do so. I find it strange that I have decided to get serious about real writing and also learn to paint this year when both of these things have been on my bucket list for years with little to no action on my part.  Why would I would pick a phase of my life when I have so many stressful events happening to get serious about two pretty big line items on my list?  The timing just seems odd.

Is it because I really am less content with the work I do for a living?  Lately it does seem kind of silly and mundane. And I have a really hard time getting as fired up about things as much as my clients do. Actually as much as I used to back when I donned the corporate cloak and meeting an ad deadline was worth ruining everyone’s weekend for.

Or is it because I’ve read enough self help and positive energy books to fill a library (and provide much amusement to my relatives with my new age philosophies and hypotheses).  I truly am a firm believer in the laws of attraction and the power of visualization.

Maybe it’s because I keep getting reminded of how short life can be.  Or worse…what if I’m falling in line with the cliche of the the middle aged woman who wants to “find” herself? Luckily I’m not dressing like a hippie just yet and I can’t stand the smell of patchouli.

It’s probably more likely that it’s some form of self-soothing to escape and to find a different kind of release.

I’m really not sure what the answer is. But it does makes me wonder what else is possible and what could happen if I decided to open the throttle a little more.  Maybe I’ve had it on halfway for a while – following the path of least resistance and what’s expected. I think we all fall into that trap more often than we’d like to admit – building dams of resistance that maybe just have to break at some point.  The result can transform the slow trickling stream of content into a swollen river of possibilities.

One thing is for certain.  It feels right.  And for that, I’m grateful.

Hoarding, buried alive — or in my lamps

There they were again, or maybe there she was.  Staring me down as I pulled into my garage this morning.

These two lamps were given to me by my late sister probably 20 years ago, just seven years or so before she died in a car accident at 36.  She gave them to me when her budget allowed her to upgrade her lamp status and when my budget was in need of free lamps.

I probably thought they were way attractive at the time, but they’re really not.  Or at least not now after years of use and an inexpensive foundation to begin with.  My sister would almost suredly agree.  They’ve served us well as bedside lamps for many years.  I have wanted to change them out more times than I can count.  In the last few years in particular they’ve seemed a tad sketchy electrically speaking.  The one by my side of the bed even had a habit of turning on in the middle of the night sometimes.  Was it electrical?  Hmmmm.

I have just enough belief in what’s out there in the spiritual world to be swayed  by a psychic I once saw in an effort to communicate with my sister.  She told me that my sister tries to communicate with me through lights and at night, in my dreams.   I know you’re thinking – well sure, that’s a classic easy reach that anyone desperate to believe might make a connection with.  I even thought so.  Or did I?

As a true skeptic who even tries to set psychic types up to fail,  I also yearn to believe that maybe — just maybe — they really can help me talk to her.  There are just so many things I would ask her.  There are so many memories from my childhood when I lived with my mom and my sister (the Three Musketeers)  where  I can’t quite recall all of the details.  Who would have imagined my sister would be gone and my mother would end up with Alzheimer’s so advanced that she hardly even speaks?  Who would have thought I should have been taking notes for goodness sakes?   They say it is this kind of love — and love lost — that flames our endless desire to communicate with those who have passed on before us.  Especially those that weren’t supposed to.

Back to the lamps.  So, I religiously watch the Hoarding, Buried Alive television show, which to my family’s amusement is what causes me to go on mad purging binges – clothes, furniture, you name it.  My unneeded hoard finds its way to my donate bins and designated areas at least twice a month.  Afterall, it’s just stuff.  And if I’m not using it, someone could.  Plus, from what I witnessed in the homes of  my late grandparents on both sides,  I’m afraid I  just might have a tad bit of a hoarding gene in me somewhere.

So, finally I decided it was time to donate these lamps and get real “grownup” bedside lamps.  My husband appeased me and accompanied me to many stores in search of the perfect bedside lamps, which we found.  I still don’t feel like a grownup, but that’s beside the point.

But what to do with the lamps? I  regularly give most of my donation worthy items to my housekeepers – furniture and all.  They strike gold at my house at least monthly.  Or I like to think they do. I just wish I could understand what they were saying to each other whenever they bag up my donate bin that I keep next to the vacuum.  For all I know it could be “Look at this crap this lady thinks we want…”  But I like to think it’s not, especially since they take it enthusiastically. At any rate, I didn’t want to give them these lamps in case they really did have electrical problems.  That would keep me up worrying for sure.  And I knew that Goodwill probably has to test everything before they sell it.  Or that’s what I tell myself.

So, on three different occasions I have loaded these lamps in the back of my car to take them to the Goodwill donation center along with my other purge-fest prizes. It’s always right at the moment when the guys helping me unload my Hoarding Buried Alive load of treasures point to the lamps and say “these too?” when I freeze.  I tell them not to take the lamps, just everything else.  Then I carefully drive the lamps back to my house and set them at the front of my garage again until I can figure out what to do with them.

I also have a purse my sister gave me that I will never carry again because it’s such a bad luxury brand knock-off.  But I vividly remember how proud she was to buy it for me and how excited I was to have it (same spot in my budget timeline as the lamps).  I remember how much she smiled as I modeled it.  I will never donate it, even after a hoarding series marathon.  I also have a cheesy belt that she gave me that I will never wear, but that reminds me of us going through each other’s closets and making fun of clothes in need of purging. Both items hang inside my closet where I can see them and just know they are there.

Maybe these lamps are my sister’s way of staying in my busy life when I try so hard to keep her memory alive but life gets in the way. And for that I’m grateful.  I think I’ll find a place for them afterall.