Tag Archives: writer

I’m Seeing Purple. Gratitude Experiment: Day 32

I walked in the Walk to End Alzheimer’s this morning. What a terrific feeling of hope and camaraderie to walk away with. Last year the Denver walk broke its record with 8,000 walkers.  I guarantee you it was an even bigger crowd today.

I walked with a good friend who walked in memory of her mother who she lost to Alzheimer’s three years ago.  And I walked in memory of my Aunt, who we lost to Alzheimer’s a year ago this month and in honor of her sister, my Mom, who I’m losing to Alzheimer’s a little more each day.  I drew a picture of them on a huge sign they had for people to paint memories of their loved ones.

In a sea of purple, I saw photos on the back of so many walkers’ shirts. Photos of loved ones lost to this hateful disease. The thought that so many like me are fighting this fight is both comforting and terrifying.

This disease isn’t going away anytime soon, as the numbers continue to climb.  Yet it seems like the world is in denial about this disease and how very real it is.  Perhaps it doesn’t seem as real because you don’t visit anyone in the hospital when they have this disease?  And because you never hear anyone with it describing their suffering?  Because they can’t speak for themselves.

But it is very real.  And someone new is diagnosed every 68 seconds.  And by 2050 it will be someone new every 33 seconds.

Ironically, federal funding for Alzheimer’s research pales in comparison to that for other chronic diseases. According to University of Mississippi Medical Center, the $450 million allocated by the National Institutes of Health (NIH) is equivalent to less than 15% of the research funding for HIV/AIDS, less than 11% of funding for cardiovascular disease research, and less than 8% of funding for cancer research.  And for every $28,000 spent on Alzheimer’s patient care, only $100 is spent on research.  In fact, the government funds more nutrition research than it does Alzheimer’s research.

I recently had the privilege of listening to a scientist discuss research initiatives and progress made. Scientists believe we are getting close and even at a tipping point.  We just need a commitment from the federal government to fund research.

And we’re getting there. In January of  2011, the National Alzheimer’s Project Act (NAPA) was signed into law by President Obama. According to the Alzheimer’s Association, The National Alzheimer’s Project Act (NAPA) will create a coordinated national plan to overcome the Alzheimer’s crisis and will ensure the coordination and evaluation of all national efforts in Alzheimer’s research, clinical care, institutional, and home- and community-based programs and their outcomes.

But it’s going to take much more. The public has to make it known what our federal priorities with regard to the impending Alzheimer’s epidemic should be, especially given shrinking budgets at every turn.  More people need to speak up and take action, contact their Congress representative or become advocates through the Alzheimer’s Association.  To put faces on the need. The website of the Alzheimer’s Association has advocacy pages dedicated to helping you do just that. http://www.kintera.org/siteapps/advocacy/ActionItem.aspx?c=mmKXLbP8E&b=7516993&auid=8520366  I know this is  a blatant plug for my cause, but I know with every molecule in my body that you DO NOT want to watch this happen to anyone you love.

If you’re still reading this and you’re not exhausted, I commend you.  And I appreciate you taking the time.  I’m truly grateful that you are reading this, that I went on that walk today, and that we can end this.  Let’s do it.

What happened to the Wonderbread prizes? Gratitude Experiment: Day 32

If only I still had my Flintstones and Bugs Bunny grape jelly jar glasses.  They were awesome.  I used to love our full collection of Welches jelly jar glasses accumulated from the absurd number of peanut butter and grape jelly sandwiches I used to consume after school each day in the mid 1970’s.  I drank cold milk in my groovy jelly glasses and sometimes I had Spaghettios on the side (the uptown kind with the little frank slices).

Long before fast food chains started offering lovely “collectible” glassware, grocery store food brands gave away killer loot and I lived for that stuff.

I remember the prizes in the cereal boxes – maybe they still do that?  But I’m sure the ones back in my day were better — and probably nice and hazardous and choke-worthy.  Oh yeah, plastic rings, fake tatoos, little plastic toys definitely small enough to choke on and probably some flammable or lead based prizes.  I specifically remember Fruity Pebbles always having the better prizes and because I didn’t like that brand, it always put me in a cereal choice conundrum.  Sometimes I would even forfeit cereal flavor for prize selection.

And I will never forget the smell of fresh white bread as I took each piece out of the bright red, blue and yellow, polka dotted Wonderbread bag as soon as we got home from the grocery store.  I had to get to the plastic wrapped flat prize at the end of the package, dust the crumbs off, rip open the plastic and stare in awe of its fabulousness.

Sometimes those Wonderbread people (I wanted to use another word) even taunted me and I could see the prize through the end of the package through a little clear window at the bottom.  Talk about pure torture. I may have ripped into a few packages on the ride home, covering my mom’s gigantic 1977 Thunderbird’s black interior and vinyl seats with white bread crumbs.  Battlestar Gallactica, ET, and Hanna Barbera cards were the best. I’m sure my Mom was thrilled with the condition of the bread slices after I handled each piece (ick I would freak on my kids if they did that) and jammed them all back into the bag.

I don’t have any of those fabulous prizes any more but my Mom did manage to save my complete Kool Aid character plastic mug set and they are in my kitchen cabinet.  The one pictured above I just found on ebay, it was my favorite. I think I had to collect a certain number of proof of purchase seals from Kool Aid packets and mail them off to get the cups one at a time (and I got like twelve, from grape flavored Kool Aid. Clearly I was obsessed with grape flavor anything).   Those were the ‘grape to excess’ days.  And surprisingly I still have my teeth, especially when I think of all the sugar we poured into the pitcher.

I have no idea what made me think of all of these Wonderful goodies today, but I know I’ve been writing about heavy stuff lately and my brain was starting to pulsate.  And it’s the end of the week and I’m toast.

What food kiddie prizes do you remember?  Did you have a favorite? Leave a comment below and tell me what your favorite was.

Thanks for reading.  Maybe I’ll have a martini in my Kool Aid cup tonight. And for that I will be very grateful. Happy Friday.

Why Alzheimer’s Is a Drag. Gratitude Experiment: Day 31

Even though it goes against the grain of my 100-day Gratitude Experiment, I feel the need today to write about why my Mom having Alzheimer’s is a drag.

I’m convinced that some gratitude will come to me by the time I finish writing this.  And I’m hoping these thoughts will help my readers cherish every moment they have with their loved ones.  And take nothing for granted.

My Mom having Alzheimer’s is a big fat drag because:

1. I wish I would have spent more quality time with her before she got sick.

2. I wish I had asked her if her favorite color was still yellow when she could still tell me.

3. I wish I would have paid better attention to the signs in the beginning.

4. I desperately wish for rare moments of clarity to happen when I am near.

5. I worry about her dignity.

6. Most healthcare workers have no clue how to treat a person with Alzheimer’s.  And it makes me want to help change happen.

7. She is afraid to take a bath.

8. I wish I could remember the name of that flowery lotion my grandmother used to give her every Christmas.  And I wish I had someone to ask that would know.

9. I worry about my Stepdad being sad and tired.

10. I worry about my Stepdad getting hurt and me not knowing.

11. I wonder how much of what I say she understands.

12. I wonder if I offend her by babying her.

13. I  wish I had taken better notes about my family history.

14. I wish I really knew when all this started – so hard to tell.

15. I worry about when the next shoe is going to drop.

16. I think about how she would not want to be this way.

17. I worry that she is frightened and she can’t express it.

18.  I’m scared to death it’s going to happen to me.

On the other hand, I am still able to be grateful because:  (whew, glad some gratitude came through)

1. I love it when I have what seems like a tiny a breakthrough with her.

2. I am happy when she smiles her old smile.

3.I love to be silly and make her laugh (when I use Three Stooges type humor it cracks her up).

4. I can tell she enjoys changing the bed sheets with me.  Especially if I’m silly while we’re doing it.

5. She’s still my Mom in there.

6.  I love that she said  really sweet things to me that day a year ago when I did her hair for her, when she was better able to comprehend and talk.

7. My stepdad is solid as a rock, and I love him for it.

8. I’m lucky that she lives close now so I don’t worry even more.

9. I can have these tiny moments of joy with her to always remember.

Thanks for reading.

Reason to Think. Gratitude Experiment: Day 30

Today I learned very sad news about an old school friend who lost her son to suicide this morning. He was only 16. On the outside, this handsome young man seemed to be a kid that had absolutely everything going for him. My heart aches for their family and my stomach is weak at very the thought.

Though I do not know details about events leading up to this tragic event, it makes me want to stand on my little soap box for a bit about depression.

Depression is real. It exists. It is not made-up or imagined.  Clinical anxiety and depression are neurological disorders, and are due to an imbalance of chemicals, such as serotonin, in the brain.  It cannot be wished away.

Our society as a general rule does not take depression seriously and tends to paint it with the biased brush of weakness.  This is mainly because it is misunderstood. And when people don’t understand, they can often jump to conclusions, just like in politics or anything else. But depression can happen to anyone, big or tall, male or female, old or young, weak or strong.  It can happen for a short time or it can happen for a long time. There are many hereditary factors as well as external factors that can affect the odds of someone experiencing depression.

According to MedScape.com, as many as two thirds of people with depression do not realize that they have a treatable illness and do not seek treatment. And only 50% of those diagnosed with major depression receive any kind of treatment at all.  Until it is better understood by the public and even health providers, the stigma will continue to outweigh the benefits of diagnosis and treatment.

It is important to note that depression is very common in teenagers, as well as adults. Suicide, most often a result of depression, is the third leading cause of death among people aged 15 to 24 years old and the eighth leading reported cause of death in the United States.  Male teenagers are much more often successful at suicide attempts.  According to Wikipedia, American males between the ages of 20 and 24 have a suicide rate that is seven times higher than that of women.

For teenagers, changes in behavior, friend choices, academics and attitude must be more than noticed.  They must also be addressed head-on, with professional help if needed.

I must also note that therapy is very misunderstood by society.  Participating in psychotherapy is not a sign of weakness. Actually it is quite the opposite.  It requires a willingness to dig deep into self, and to understand complex patterns of thinking. It’s for those with the type of grit necessary to turn their own heavy handed mirror inward and accept themselves, flaws and all. And as a reward, students of therapy get to grow by leaps and bounds from the knowledge gained.

Today, while I am truly saddened for my friend and her family’s great loss and the sorrowful days ahead, I am thankful for the knowledge that depression is slowly becoming more understood by our society.

My Kimono Won’t Close. Gratitude Experiment: Day 28


My husband uses the term ‘open kimono’ to describe my transparent ways.  It’s because I’m not physically able to tell you one thing and really mean another, even if I tried really hard.  And why I would really suck as a salesperson selling anything that I didn’t believe in.

It explains why women who host home trunk show clothing parties, jewelry open houses, or cooking gear parties can’t stand it when I’m one of the guests.  Because everyone there knows that I’ll tell you if you look 30 pounds heavier in the latest trendy vest or if you look like you’re drowning in the latest fashion-forward floor-length dress.  Usually ten minutes in, guests realize that I’m someone who will give them an honest opinion despite its potential impact to a bottom line.

Urbandictionary.com defines the ‘open kimono’ phrase as: (adj.) – business marketing plan that allows consumers to know what’s behind the entire operation, with no secrets kept inside the proverbial kimono.

Some say the phrase dates back to feudal period of Japanese history, when warriors or adversaries would open their kimonos as an offering of trust to show they had no hidden weapons.

My open kimono explains why those who are friends with me know right where they stand with me at any given moment.  I don’t attempt to hide joy, worry, appreciation or aggravation. (I’m actually not sure if I would be physically able to.) I’ll tell you if you’ve hurt my feelings or upset me and I will be completely honest about it.  I’ll also make sure you know if you’ve touched my heart.

I cry at school plays, I cry at weddings, and I cry when I sing Amazing Grace because it reminds me of my grandmother who cried when she sang that song.  I still cry when I say goodbye to my parents after a trip back home. And sometimes I cry when I tell a happy story that makes my heart swell.  And I’m okay with all of it. Even though tears make stoic types uneasy, I know that letting my guard down allows me to tap into depths of emotion that left untapped could make me stale.

Sometimes I think about closing my kimono a little more often.  But then I remember what a fleeting gift this life of mine is.  So why waste time not getting to what’s real when it could all change tomorrow.

I realize this is who I am, open kimono and all.  And for that I am grateful.

Breakfast Club Flashback. Gratitude Experiment: Day 25

Today as I sat waiting in the high school parking lot to drop off my son’s tennis equipment before he left for a tennis match, I was transported to another world.  Actually back to my world back in high school.  And the world according to the Breakfast Club movie in 1985.

This movie has been hailed as one of the greatest high school films of all time, by John Hughes (God rest his fantastic movie making soul).  And the song – “Don’t You Forget About Me,” that instantly reminds my generation of scenes from the movie that have stayed with us since.

The movie follows  five students—Allison Reynold (Ally Sheedy),  Andrew Clark (Emilio Estevez), John Bender (Judd Nelson), Brian Johnson (my favorite Anthony Michael Hall),  and Claire Standish (Molly Ringwald) as they surprisingly find common ground with each other throughout a single day of detention on a Saturday.  Each student represented a different clique or stereotype within the school.  If you haven’t seen it, rent it.

Watching the disbursement of high schoolers on a Friday after school took me right there. I watched each stereotype pass the front of my car. During a phase when I am feeling a little old and thinking things are so very different, I suddenly realized things really didn’t seem that different. Had nothing really changed except for the fact that they each had a cell phone and ATM card in their pocket?

The ‘Jock’s (although in this case both male and female) were gathered on the sidewalk high-fiveing each other.  The ‘punk’ hard edge type kids were all walking alone with a jolted gate, looking very guarded. I even saw one bump into a jock, then the jock got upset and held his hands out just like in the movies (if only he had been wearing a letter jacket), then the punker extended his hand and they shook hands and did a “bro” hug.  I should have been filming as it was stereotypical perfection.

Then I also watched as the many ‘princesses’ dialed for their rides exhaustedly while flipping their hair in frustration and simultaneously watching peripherally to see who was checking them out.  Then came the ‘brainiacs’/nerds as I watched them attempt to talk to the cute girl jocks while the huge guy jocks with gelled hair stood to the side fanning their feathers.  They didn’t stand a chance but I was rooting for them.  And I sadly watched a ‘misfit’ walk out to her car alone.

Maybe they will all be in detention together one day and bond over their similarities, but I doubt it.  More likely, they will all find themselves in different cubicles of the same corporate world and bond over the lack of sunlight.  Sorry, that was dark.

Today I am just grateful that the world isn’t really racing ahead as fast as I thought.  And that makes me happy.

Global positioning gratitude. Gratitude Experiment: Day 24

The other day my son asked me how people used to get around before Global Positioning Systems, or GPS.  I’ve gotten so accustomed to relying on a GPS to help me find my way, I actually had to think about it for a while.

I told him that  for years we used to look a lot of things up on MapQuest and print out directions to take with us before we left .  And before that, we made sure the car was stocked with maps of whatever state we were crossing or city we were in. I remember driving across the country for two days with at thick  notebook of maps for each state we crossed.  And I’m pretty sure we padded a lot more time into car trips in case we got lost.

Just the other day I found a stack of car maps in my garage and couldn’t figure out what to do with them.  I didn’t have the heart to throw them away.  I’m sure there’s some kind of craft project I could do with them, if I was crafty.  Wallpaper the dining room with them?  That could be cool.  And come to think of it, should maps be saved in case there is an Apocalypse and we lose power to map by computer?  Something to think about.  Clearly, we take computerized mapping for granted.

All who know me realize that calling me geographically challenged is an understatement, so I am especially reliant upon my GPS.  One of my dear friends who I have known since second grade is equally challenged in this area.  Back in college, we were known to entirely miss highway exits and end up an hour out of the way — sometimes in the wrong state — before we realized.  We went off of memory for some road trips, and that was a dangerous prospect when the two of us were in a car together. Did I really just admit that?  Yes.

I used to call another dear old friend my “Geographical Yoda” because if I was lost  anywhere in my home town, I could call her and she could direct me by phone.  She was my OnStar before OnStar existed.  And I didn’t even drive a Cadillac.

I think of the generations who have never known mapping any other way and I am glad that I can read an old fashioned map (for the most part).  But today I am ever so grateful for my GPS.

A Bittersweet Solstice Approaches. Gratitude Experiment: Day 23

Bittersweet defined is a combination of both bitter and sweet – a feeling that is both happy and sad at the same time. This familiar emotion finds its way back to me each year, just as the first signs of Autumn find their way back to us all.

It’s my favorite time of year and always has been, flooding me with memories of autumns past.  The smells of damp leaves and firewood, the crisp air that fills my lungs, the glorious colors that open my eyes to nature each year, and the sound of fallen leaves underfoot.  My very favorite season.

The approaching September equinox called out to me today, as it does each year when the summer’s curtain draws to a close.  Letting me know that fall is approaching and the time for winter is near. It’s sad to see the summer end, but also sweet to see the cycle complete.

There are two equinoxes every year – one in September and one in March.  When the length of day and night is almost exactly equal all over the world, with seasons opposite on either side of the equator.

Derived from Latin, the word equinox means “equal night.” I explained this to my kids as I drove each one to school this morning, and as I do each year when the sun on the horizon nearly blinds me as if to awaken me from a summer’s sleep.

The autumn equinox happens each year, the moment the sun crosses the equator, always on September 22nd, 23rd or 24th. On any other day throughout the year, our planet tilts away or toward the sun.  But not on each equinox, when the sun shines more directly upon us than any other days of the year, as if to remind us of our smallness in the universe.

Thirteen years ago on September 22nd, just before the autumnal equinox, my sister crossed over and left this world, just as the sun crosses over the equator.  The sun was blinding her way that day, or maybe calling her toward it. It was also my mother’s birthday.

I’m really not sure what God and the universe had in mind that day, but I’m determined not to let it zap the gratitude out of me as I gear up for this month’s memories, filled each year with emotions, both happy and sad.

When I see the sun each morning so boldly reminding us of its presence near the horizon, I know it is a bittersweet reminder for me to plant the seeds of both appreciation and caution for all that is. Today I am grateful for the sun and all that she reminds me to be thankful for.

Not forgotten. Gratitude Experiment: Day 16

I raced to get home after grocery shopping this morning to arrive before my step dad dropped off my Mom.   This is part of our routine.  He drops my mom off on the way to his weekly doctor appointment and I watch her for a while.   My mom has Alzheimer’s and is only 71.

Mentally, I have to gear up for visits with my mom, even though it has gotten easier since they’ve lived nearby for the last year and a half.   I used to be mentally drained for at least a day or so after every visit.  Sometimes it still really takes it out of me to see her this way while knowing that there is much worse to come.  But as I have worked through my grieving process for my old mom, I have learned to try to find a bit of  joy in our moments together as I search for her old self within her.  I like to think maybe my real mom is in there and it will just take me doing or saying just the right thing to get a piece of her back, even if just for a minute.

I looked out the door as she was getting out of the minivan. He usually lets her come up the sidewalk by herself .  Thank God she had her teeth in — my stomach sank at first when I couldn’t tell. Any casual observer would  think nothing of this.  Until she gets to my door.  She reaches for the door, then she stops and stares at me blankly.  Then today, in response to my hello, she said “hi” in her familiar mom tone.  (Hearing her old voice at the beginning of a conversation used to make me think maybe I just dreamed this whole thing.) At any rate, this was much better than her usual shoulder shrug.  I breathed a sigh of content.

As I walked her into the kitchen, the family history notebook she put together years ago was on the counter.  Secretly I was hoping she would recognize it. Maybe it could be the spark for today?  She spent a few years compiling it about 20 years ago and it is ever so thorough, with ancestry charts, old letters my grandfather sent home from WWII, newspaper articles, birth announcements and the like.

I point to it and explain to her that it’s the family history book that she put together years ago.  I told her how helpful it was for my youngest son’s school project last night.  She looked at me puzzled and said, “I did?”  I pointed out photos of her parents and her sister and she gave me a look that was both puzzled and blank at the same time. But I wasn’t giving up.

I motioned for her to sit down as I helped her understand the chair.  I let her thumb through some pages on her own. Maybe the pages would feel familiar?  I showed her the  photos of all of the houses her parents had lived in.  Photos have worked a little before. I narrated as I walked her though the book .  She was more intent than I have seen her in months.  I told her that I would be right back and I ran upstairs to answer a quick email for work.  I do this occasionally with ears perked in case she opens the front door in search of my step dad.  She is always looking for him when she is at my house, as though she thinks he’s in the house or just outside. She is much more at ease when he is at her side, which warms my heart like an old love story.

I started getting anxious and quickly jogged down the stairs, worried that I had taken too long.  To my surprise, I found her still sitting in same spot very intently thumbing through each page over and over and back and forth.  She looked content and engaged.

When my step dad arrived to pick her up she pointed at the picture of herself in a newspaper article when she was one of the beauty queens at her college.  She told him “That’s me” and smiled her cute little smile.

My heart sang.

On the second page of this 200 page family history notebook of my mother’s ancestry, it reads:

“I wish I had been more interested in what my parents told me about their families and early years.  I put this history together in the hopes that the knowledge and memories I have would not be forgotten.”

And for this I am grateful.

36 Windows Open and Counting. Confessions from an Extreme Multitasker. Gratitude Experiment: Day 15.

This is a definite trend with me.  Taking multitasking to an almost dangerous level.  It gives me some kind of adrenaline rush I think.  Maybe I should be worried?

I just counted and I have 36 windows open on my computer right now.  At least nine pertaining to work including several Word docs and Adobe PDF files, plus a few blogs that I follow, Amazon and Steve Madden shopping carts open with things I am on the fence about,  and several emails that I don’t want to forget to act on –  about work projects, writing, kid school stuff, kid sports stuff, you name it.  Oh, and I’ve got a painting behind me that I’m working on every time I walk by it.

My family has a feeling this is what the inside of my brain looks like.  And it frightens them. My husband jokes that he will never have memory issues as long as he’s married to me because I change topics so much it keeps him on his toes.  And my boys love to make fun of me for the random unrelated comments I make all the time, out of nowhere.  I’m so very glad that I give them such great material to work with on a daily basis.  I should charge them for it.

Any friend of mine will tell you that every time they walk in my house the furniture is rearranged or a different wall is painted or the chairs are recovered.  Something will be different.  They’re probably checking to see if I switched my kids out for ones who like me more. Maybe it’s a condition, keeping things moving and changing and happening. I’m not sure but it would make great fodder for reality television.  “Brain Seize. Extreme Multi-tasking” — new this fall on TLC.

Speaking of extreme, I’ve also been known to take my multitasking feats to extreme levels.  Many will tell you (as they choke back their laughter) that I’m not the most graceful person and especially when I’m multitasking. I’ve been known to trip and fall and bruise myself  regularly.  Usually it happens when I am watering the plants, talking on the phone, jotting a note down and checking my email on my phone or something — all at the same time while balancing with one foot on a step stool.  This must be inherited because my sister was the exact same way.  My dad tells me I just like to get things done fast.  He also regularly tells me that I need to slow down.

And as a true stacker type personality (if you are one you hear me), I must have these things visible – windows, files, papers, notes, husband, kids, you name it.  Things on most days are orderly at some level and grouped by category, but they’ve got to be out where I can see them.

The average person would find either of my desktops – physical or computer – enough to drive them mad.  And being around me when I’m on a multi-tasking high just plain exhausting.

So today I am grateful that my computer hasn’t shut down on me.  And my family hasn’t locked me up.

Gratitude Experiment: Day 4

Today I am grateful that my writing coach is a fabulous cheerleader and quasi therapist. And also just a terrific and compassionate person. Despite all my best efforts to concoct many complicated and even compelling excuses not to write over these last few months (other than the usual mundane words I use to describe underground gasoline tank monitoring systems and electronic health records), she has been able to push me over my mental hurdles and hold me accountable.

Ask anyone who knows me and they will tell you that holding me accountable for something for which I think I have perfectly good excuses not to do is a TALL order. Some might even describe me as a stubborn procrastinor with undiagnosed attention deficit disorder who will alphabetically organize her entire pantry before performing the task at hand.  I’ve long convinced myself that my procrastination techniques are uber productive and help me produce better writing.  That’s my story and I’m sticking to it.

Despite this daunting duel of wills, my coach did not throw in the towel.  She has encouraged, prodded and even tried to trick me into writing by getting me to forget about my excuses.  As a result, I have submitted an article to a magazine (which is getting published next month) and I am writing this blog.  My list of articles, essays and books I want to write is extensive.  It’s been growing for years.

I have pushed through enough losses and obstacles in life to know that there is a reason for it.  And that reason is to help others face their own obstacles.  And to keep their eye on the gratitude all the while.